My dears, I was really surprised how the people reacted on my story about Crohn's diseas and because of the events that happened on Monday I think, I’m ready to share and write something about my other thing that is making my life a little bit difficult.
Finally I was ready to accept the fact that I have Crohn's diseas and then of course came new bomb in my life. I’m epileptic. What?! Why the hell is this happening?
So this is the other story that changed my life .
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It was four years ago. December 31.
We have decided to have new years party in my parents weekend house. Not a lot of people just my closest friends. It is difficult to maintain friendship if you are living 200 km away, but regardless of the distance for big events, we always come together and celebrate together.
With so much work I really don’t have time for my friend so I was happy to be together with my loved ones.
So, I do not remember anything, so I'm writing this story as my friends told me.
We were ready to have a great party. Alkohol of course - everything you want. We were drinking, dancing, laughing, just having amazing time.
They told me, I was a little bit wird all night because every now and then I told, I’m having deja vu. I think everybody know the meaning of that but for all of you that you dont know : “ it's a feeling you have as if you've already experienced the present situation.” They didn’t give a lot of meaning to that, because hei it’s deja vu and everyone has already experienced it, so nothing serious.
It was a lot of alcohol and I mean a lot. Beer, wine, whisky, tequila ... so everything what is really bad for my stomach, but I told to myself that today is the day I'm not sick and I will just have a good time. And that’s it. I can’t remember anything else.
When I opened my eyes, everything was so bright. I was trying to move myself but I couldn't. What the hell ?! Where am I? What is going on? I am in hospital ?! On my left side I noticed a note. "Hei honey. Don’t be scared but you had a seizure and we take you to the hospital . Is Januar the 2'nd . And hei, don't forget, we are engaged"
Seizure, engaged, hospital ?! Stop stop stop, what is going on ?!?! Then my boyfriend came. I started to cry.We are engaged? Are you serius ? I couldn’t remember anything. He hugged me and start explaining what have happend.
We were very drunk. 10 min till midnight, my boyfriend said we are going outside to look at the fireworks. My friends stayed inside because it was to cold. Exactly at midnight, he went down on one knee and said that I was the love of his life and that he wanted to spend the rest of my life with me. Will you marry me ?Question thath every girl dream about. I said yes ( he said, I asked 100 times, if he's seriously. )
Then we came inside and told our friends we are engaged. The were all so happy, after all we are the first couple in our little company to got engaged. And so we celebrated.
Around 5 o'clock in the morning, I was sitting behind the table and they said I didn't speak for a while now. My friend asked me something, but I did not react. Then all of the suddenly my eyes roll up and my body started to shake. My boy immediately jumped to me, laying me on the floor and calming me down. Usually the attacks last for a few seconds and then it calms down, but by me, it lasted for a minute. When I finally calmed down, they took me to bed and hoped it would not happen again.None of my friends didn't see that in real life. They were scared and in shock. I cannot imagine what was going through their minds.
Unfortunately, the attacks were repeating and because it did not end, they took me to the hospital. In the previous post (@tinabrezpike/life-with-a-crohn-s-disease-nr-1-how-it-all-started)
I said that doctors in Slovenia are not too friendly. Instead of accepting me immediately, they attacked my boyfriend and friend why they brought me, because it doesn't look serious. Of course, my boyfriend went crazy. My dears, the girl experiences attacks every few minutes, for the first time in her life, and they think is not serious? At this time, I have another attack and then they realized that the situation was serious.
So yeah, I was finally released from the hospital, still not sure what have happened. I missed two days. I can’t remember my own engagement :(
They said to me this will not happen again so I should not worry. But out of the precaution, I've visited my doctor in Austria. We maked some test, but everything looked normal. She said I don’t need any medication but I need to be carful whitbdrinking . So no alcohol for a while. I took that advice. I didn’t drink and I started to forget what happened. Life’s go on.
I used to work just a few kilometers away from my home. I was working in the morning, but because of my headache, I went home early. My husband was at home and he waited for me with lunch. When I arrived home, I told him that my head hurts. And then again a complete loss of memory. I only remember moments that I was lying on the ground and then I woke up again in the hospital.
He was beside me. Again, I experienced a seizure. Now the situation was more serious. The first attack was one month ago and because I did not drink alcohol at this time, they were not sure why did happend again. I was not diagnosed with epilepsy, but just in case, I got the pills I needed to take.
And jeah life was going on. I was planing my weeding and everything was just beautiful. After half a year, I decided that I would no longer take medication because obviously, it’s not epilepsy.
I was healty again. Or so I thought.
Then attacks started again. Unfortunately, I have such powerful attacks that they must take me to a hospital where I can receive a right treatment.
So now was offical. I am epileptic.
I lost my driving licence for a year, no flashing light in my vicinity, no alcohol, so standard procedure for the people with the epilepsy. They said my thoughts are too busy and I need to find a way to relax and to push everything away from my mind.
Because of my other condition, they wasn't sure If the pills they were giving me, will help. But It was getting better.
In July, we finaly married and we went to Greece on our honeymoon. I was so happy and so relax.
But two days after we came home another attack happend. This time I hit my head prety hard because I fell on the sink. I woke up few hours later on the floor in the bathroom.
I was in shock because I bleeded. We went to the hospital. Again...This time I know it why the attack happend. I forgot to take a pill. ONE PILL and two days later attack repited again. Then they gave me new medication and finaly I was fine for about one year. ( I was taking pills regulary, I still am)
I can’t imagined how hard is that for my family. I watched some videos from other people with seazure, and I must say that is not fun thing to watch.
Why I decided to write this post now, is because on Monday I had another episode. This time at work. And not in the office no, outside where everybody saw. My closest co-workers knows I have epilepsy, but our company is not small.
I woke up in the hospital and everything that I can remember is the face of my co-worker who calmed me down and his voice telling me everything's going to be alright.
They were all so worried for me. I did mention it before, not a lot of people experiencend that in real live and it really doesn’t look nice.
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I need to say that my life is not boring. I know now, how to calm my mind and which natural products to use .
It's time for me to stop burdening with this stuff and accept everything that's happening to me.
Words of the smart mind : “only people who are strong enough, are experience such diseases.”
Needles to say, pretty intensive life. I'm still not sure how to go on, but I have so much amazing people beside me and much support.
I recived a lot of good advice from you guys, that’s why I decided to write about this too, so if you have any advice, I will be very grateful for sharing it with me.
Something for the end:
Don’t be afraid. Accept everything that is happening and learn to live with that. Its not easy but we are not alone and we can help each other. ❤️
I really need to thank to my husband @marjanko . I got the best gift in the whole world. I meet the man of my dreams. Fate or so . ☺️❤️❤️
Thanks guys for reading this and if you have any questions just ask.
with love, @tinabrezpike ☺️❤️